One of the best perks of working with other chronic patients is the authenticity of conversations that come up around the products we create.\u00a0 Nothing makes me feel so seen and valued like hearing my lived experience from someone else\u2019s mouth!\u00a0\u00a0<\/p>\n
This struck me recently at a brainstorming session about Mighty Well<\/a><\/span>\u2019s newest product, the Self Care Case<\/a><\/span>.\u00a0 The patients in the (virtual) room were sharing what we were excited to use it for.\u00a0 Most were medical supplies like EpiPens, snacks for low blood sugar, medications, spare face masks<\/a><\/span>, hand sanitizer and other necessities for infusions\u2026 but we also each carry items with us that have nothing to do with illness.\u00a0 Our favorite shades, sunscreen, makeup, cozy socks.<\/p>\n Illness and disability have the tendency to impact every aspect of daily life.\u00a0 Our morning routine.\u00a0 What we eat.\u00a0 Where we live.\u00a0 What we do to earn a living \u2013 or if we can\u2019t work, how we spend our time.\u00a0 How we go places.\u00a0 How we connect with others.\u00a0 How we sleep.\u00a0 Acknowledging this is helpful at times \u2013 I recently saw a tweet from @hijade2madre<\/a> that said \u201c\u2026Disability shapes my everyday life and I\u2019m going to need you to stop making that be a negative.\u201d\u00a0 This side of the equation is so important!\u00a0 Yes, these things impact our every day and do<\/em> define parts of our identity.<\/p>\n But, like most aspects of our complicated lives, the other side of the equation is equally important: illness and disability are not the only<\/em> factors that impact our identity!\u00a0 I may be a proud spoonie who doesn\u2019t shy away from making my disabilities public, but that\u2019s not all I think of when showing who I really am.\u00a0 I am also a painter, a writer, a community organizer.\u00a0 I am a mom and a sister.\u00a0 I love birds and trees and gardening.\u00a0 I feel the need for queer spaces as much as spoonie spaces.\u00a0 I\u2019m introverted and sensitive.<\/p>\n I am all of these things and more, regardless of my health status.\u00a0 There are also ways in which my other identities intertwine with my illnesses:\u00a0 I love the cooler seasons because heat is a trigger for my symptoms.\u00a0 Inversely, I still identify as a rugger, despite not being able to play rugby for many years.\u00a0 I used to struggle immensely with this.\u00a0 I remember whole therapy sessions wrestling with whether I could still identify as a \u201cgood friend\u201d when I was too sick to show up.\u00a0 I truly believe now that these pieces of our puzzle still exist, even if they don\u2019t all come together right now.<\/p>\n So, who are you?\u00a0 What identities do you hold?\u00a0 What do you carry with you day-to-day, physically and metaphorically?\u00a0 We see you, even the parts that can\u2019t quite make themselves known each day.<\/p>\n Join the conversation in our Friends in the Fight facebook group<\/a><\/span>!<\/em><\/p>\n The post We Are Not One Dimensional<\/a> appeared first on Mighty Well Journal<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":" One of the best perks of working with other chronic patients is the authenticity of conversations that come up around the products we create.\u00a0 Nothing … <\/p>\n","protected":false},"author":1,"featured_media":242,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[14],"tags":[],"_links":{"self":[{"href":"http:\/\/www.animaservicios.com\/index.php\/wp-json\/wp\/v2\/posts\/262"}],"collection":[{"href":"http:\/\/www.animaservicios.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.animaservicios.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.animaservicios.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.animaservicios.com\/index.php\/wp-json\/wp\/v2\/comments?post=262"}],"version-history":[{"count":1,"href":"http:\/\/www.animaservicios.com\/index.php\/wp-json\/wp\/v2\/posts\/262\/revisions"}],"predecessor-version":[{"id":263,"href":"http:\/\/www.animaservicios.com\/index.php\/wp-json\/wp\/v2\/posts\/262\/revisions\/263"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.animaservicios.com\/index.php\/wp-json\/wp\/v2\/media\/242"}],"wp:attachment":[{"href":"http:\/\/www.animaservicios.com\/index.php\/wp-json\/wp\/v2\/media?parent=262"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.animaservicios.com\/index.php\/wp-json\/wp\/v2\/categories?post=262"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.animaservicios.com\/index.php\/wp-json\/wp\/v2\/tags?post=262"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}